Title
The Human Right to Science and the Regulation of Human Germline Engineering
Document Type
Article
Keywords
human rights; science; human germline; germline; genes; gene editing; genetic engineering
Identifier Data
https://doi.org/10.1089/crispr.2018.0053
Publisher
Mary Ann Liebert, Inc
Publication Source
The CRISPR Journal, 2(3)
Abstract
There is currently no international consensus on how human germline engineering should be regulated. Existing national legislation fails to provide the governance framework necessary to regulate germline engineering in the CRISPR era. This is an obstacle to scientific and clinical advancements and inconsistent with human rights requirements. To move forward, we suggest that the human right to science is an ideal starting point for building consensus, at the national and international levels, on governing principles that promote responsible scientific and technological advancements. Regulatory frameworks must recognize the international nature of modern germline genome engineering research, the need for shared governance rather than tech-locked prohibitions, and the fact that humans are not their germline.
